Think left and think right and think low and think high. Oh, the things you can think up if only you try!
Writer, Cartoonist, Animator, Book Publisher & Artist
If you can dream it, you can do it.
Entrepreneur, Animator, Voice Actor & Film Producer
Creativity is just connecting things. When you ask creative people how they did something, they feel a little guilty because they didn't really do it, the just saw something. It seemed obvious to them after a while.
Creativity is contagious. Pass it on.
The CF Hub goes a long way in addressing issues that are growing in the CF population like social isolation and peer reviewed information. The content is driven by the CF community, for the CF community.
65 Roses, 65 days, 65 seconds, 65 frames. Have a look at the short video I created to help raise awareness of Cystic Fibrosis.
Reachout Australia states that among other things, listening to music can help creativity, develop social interactions and self expression, help people relax and be a motivating tool.
What do you think? What band or song has this affect on you?
In this post, Mathew answers some question I posed to him about the Canadian band City and Colour’s song ’Sometimes’.
‘My CF is something that is hugely significant to me and I believe that a lot of ideas can be generated from it. Its also important to me to raise awareness of it and to celebrate how far I have come and achieved, both personally and professionally. Its been really well received so far. Everyone really likes the unique take on it and how I have interpreted it’.
It started as a dare – a simple boredom buster to keep the hospital blues at bay.
Now the stakes are higher and it’s time to complete the walk one last time.
Click to read on…
Lilybart is an online vehicle for artists and children to collaborate in the making of greeting cards to be sold online.
Lily was diagnosed with Cystic Fibrosis just before her first birthday. She is now 16. CF is an inherited disease which affects every organ in the body. Lungs and digestion are the hardest hit. Lily battles the effects of this insidious disease every day. Each day is a fight for breath and life.
Lillian Bartholomew Royer is fondly referred to as ‘Lilybart’ by her great-grandmother and is the name of our endeavor to raise awareness of Cystic Fibrosis and to provide access to integrative medicine.
Try running around your local oval while holding your nose and breathing through a straw. Hard work huh?! Well that is similar to what it feels like to a person with CF. Breathing is laboured, simple tasks can tire you out.
This post was sent in by some of our followers from the UK and presents a music video that was produced to raise awareness of CF. They also had the opportunity to get some professional rugby players to take some ‘strawfies’ as well.
Have a read!
Everyones life and lead up to a double lung transplant is different. Although people with CF share commonalities, our stories are by no means the same. In this submission from Kate, she shares an insight into her life before ‘the day’ and how it changed her after.
Midnight Oil are an Australian rock institution. With unforgettable songs like Beds are Burning, Power and the Passion plus US Forces, their politically motivated music sticks with you.
Paul describes why one particular song, ‘Hercules’, resonates with him.
I heard the Foo Fighters song ‘My Hero’ the other day while driving to the pool for the first time since before my transplant. This time I really listened to the lyrics instead of blindly singing along and then read the background story of how the song was developed. Read the post for a bit of a run down and a link to the video.
Helen has been using deviantArt for quite some years now, starting as a young girl and gradually adding her digital art pieces over time. Follow the links in the blog to see more of her work.
Ryan Fitzgerald is a photomedia-based artist living and working in Newcastle, NSW. His primary means of image-making is with the wet-plate collodion process, a 19th century method that renders a virtually grainless photograph. He was also fortunate enough to receive a Lung transplant in January 2016.
In times of struggle, collecting your thoughts and putting them to paper can have a soothing effect.
Poetry uses the words of our daily speech. It uses words that are known to all of us, but surprises us out of our normal speech rhythms.
Its effect is to light up our lives and view them from a different perspective.
Having friends pass away is confronting. As people with CF, we are faced with this harsh reality all too often and also at a young age. People pay their respects in different ways. When we see people with tattoo’s we shouldn’t judge the art as we don’t know the story behind it and the symbolisation to that particular person.
Tattoo’s are very personal. It is like a bookmark in your life and will always remember when and where you got your fist one. Heath explains his inspiration.
Music and body art seem to go hand in hand. Here is a prime example of that with Heath being inspired to have a tattoo that represents his fight with Cystic Fibrosis.
Johnny Depp said, ‘My body is my journal and my tattoos are my story.’ Tattoos can tell more about you or distract people from getting to know the real you if you want them to. Some people embrace the pain in the process of tattooing and yet others need lots of encouragement. At the end of the day, every tattoo has a story behind it.
“Art washes away from the soul the dust of everyday life.” – Pablo Picasso
Despite suffering from illness his short life, Frédéric Chopin was able to create many works that are still popular today. Originally thought to have been suffering from tuberculosis, recently theories have suggested Chopin actually had a mild form of Cystic Fibrosis. There was a family history of respiratory disease and his younger sister actually passed away at the age of 14 of a massive hemoptysis.
Despite these challenges, Chopin is regarded as one of the finest composers of the Romantic era of classical music. Talk about creative!
Treatment and outcomes for children with Cystic Fibrosis has changed dramatically over the years. More and more research is showing the nature of how easily bugs can be spread from one person to the next. The answer of late has been to separate and isolate but at what cost to the individual. In this open letter, Luke, and adult with CF who is 12 years post transplant expresses his opinion on how things are now and what this could mean for CF children in the future. I must reiterate that this is his personal opinion and on the CF Creative Space, we allow people to express opinions. Some of you may not agree, but this is a good starting point to create discussion.
Undergoing a procedure as big as a lung transplant can leave you with mixed emotions. Happiness, sadness, anxiety and exhilaration, often simultaneously. In this piece written by Sam who has received ‘the gift’, she articulately describes what she is feeling and others in a similar situation. Thanks for your courage in sharing something so personal.