My thoughts


I have been giving this some serious consideration of late. Personally I find what seems to be the advice given to young parents of CF children these days overbearing and overly cautious and I’d like to explain why.

Firstly let me state I understand the thinking behind the new cross infection recommendation the theory of it but when put into practice. I find it dangerous for the reasons I am about to state. Put simply if you tell anyone especially a child something over and over again they believe it. Thoughts and words become actions and actions become consequences.

So therefore you raise a child telling them they can’t do this they can’t do that, stay away from this or that. In my opinion you’re effectively crippling them!

As a parent you can shelter your kids from things reduce there exposure to things even create a safe haven (environment) e.g. schools being mindful and aware of the special considerations you may want made for your child. By doing so you’re not helping them in the greater picture. Do you think the world is going to give them special consideration as adults? The world can be a big scary mean place if you let it be.

By overprotecting your children you’re creating a group of people that will grow up to be unsure of themselves. To scared to try anything, to scared to attempt being somebody! To scared to chase dreams because their whole childhood they were told they can’t or it’s not safe. They’ll get hurt or sick.

Again, I completely understand how scary it must be. The medical professionals telling you to minimise risk of exposure to your child’s health and I’m not suggesting for a second you don’t adhere to their advice. Please try to find a healthy balance please let them be kids! Let them go play in mud get bruises and scratches. Don’t hinder them by saying you cant do that because it’s not 100% free of risk.

There is nothing enlightened about shrinking so other people won’t feel insecure around you is there? So please, don’t shrink your kids, let them shine. If they fail it’s a lesson learnt. If they get hurt, they will heal!

If you reduce them to a point of no return, impair them mentally and emotionally you will sadly see your children live a life unlived!

It is far better to have tried and failed than to have never tried at all.


Luke (Adult with CF, 12 years post transplant)

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Always enjoy responsibily.