Feb 13, 2017 | Motivation, Music
My Hero Foo Fighters This Foo Fighters track really resonated with me. It has a catchy hook and when you delve into the lyrics and discover the inspiration for Dave Grohl writing this song, it means so much more. Dave Grohl didn’t have CF people in mind...
Feb 4, 2017 | Drawing, Stories
My Lungs are Like Roots ‘What’s it like, Simon?’ ‘What?’ ‘Cystic Fibrosis. Living with that.’ Simon’s mouth twisted to the side a bit as he pondered this. ‘Well,’ he said at last, ‘my...
Feb 1, 2017 | Mature Content, Photography
My work currently revolves around themes of the grotesque and the uncanny, with a sub-theme of re-animation of the lifeless. I photograph using a process called wet-plate collodion, a process invented in 1851 and is the same method used to make American Civil...
Jan 28, 2017 | Inspiration, Poetry
sick times Once again I’ve protracted to a plod, this fray lingers but lives with me surprises keep me interested but don’t tamper with my head Blood is meant to be inside, in abundance, at the ready Don’t cough too much or you’ll divert it note to self, keep the...
Jan 26, 2017 | Inspiration, Motivation, Stories, Tattoo art
On the 4th of June 2011, I lost my best friend. Meegan also had Cystic Fibrosis. She was 17 when she passed away and she was 2 months off turning 18 years old. Meegan not only showed me the ropes around the hospital, she also showed me although my world had been...
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