Protracted Times

Protracted Times

sick times Once again I’ve protracted to a plod, this fray lingers but lives with me surprises keep me interested but don’t tamper with my head Blood is meant to be inside, in abundance, at the ready Don’t cough too much or you’ll divert it note to self, keep the...
Open letter to parents of CF children

Open letter to parents of CF children

My thoughts   I have been giving this some serious consideration of late. Personally I find what seems to be the advice given to young parents of CF children these days overbearing and overly cautious and I’d like to explain why. Firstly let me state I...
In a Place Not So Far Away

In a Place Not So Far Away

In a Place Not So Far Away Was a hero in the making It wasn’t anyone you or I know Not a Rock Star or Super Sports Star And I was the lucky one called for the taking.   In a Place Not So Far Away For me, it was countdown to zero But luckily, there was my...
7th August 2015

7th August 2015

This beautiful drawing was created by my wonderful friend Sarah. It represents my life and what I’ve been through. This is my story.   I have Cystic Fibrosis. I was always a very sick child, in and out of hospital from a very young age. My parents almost...

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