Why we Enjoy Getting tattooed

Why we Enjoy Getting tattooed

Getting Tattooed Before my transplant and I was a frequent flyer to the hospital and you would often see fellow CFer’s with varying degrees of tattoo coverage. Some tattoos would be following the latest trends (think barbed wire, tribal or Asian language inspired)....
Open letter to parents of CF children

Open letter to parents of CF children

My thoughts   I have been giving this some serious consideration of late. Personally I find what seems to be the advice given to young parents of CF children these days overbearing and overly cautious and I’d like to explain why. Firstly let me state I...
In a Place Not So Far Away

In a Place Not So Far Away

In a Place Not So Far Away Was a hero in the making It wasn’t anyone you or I know Not a Rock Star or Super Sports Star And I was the lucky one called for the taking.   In a Place Not So Far Away For me, it was countdown to zero But luckily, there was my...
7th August 2015

7th August 2015

This beautiful drawing was created by my wonderful friend Sarah. It represents my life and what I’ve been through. This is my story.   I have Cystic Fibrosis. I was always a very sick child, in and out of hospital from a very young age. My parents almost...
Queen – Don’t Stop Me Now

Queen – Don’t Stop Me Now

Music has definitely has helped me throughout my life, especially when i was listed for transplant. I was waiting for over 12 months and during that time I lived in hospital; I spent hours just listening to my iPod and on the odd occasion I felt ok, I would buy...

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Always enjoy responsibily.